Chinese Journal of Medical History / Zhong Hua Yi Shi Za Zhi

[This article belongs to Volume - 53, Issue - 03]

Abstract : Announcing a disability to parents poses a challenge for healthcare professionals. They must consider the parents' needs by developing a new life plan tailored to the situation. The aim of this study is to outline how healthcare professionals respond to the needs of parents upon receiving the news of their child's disability, as well as to identify the factors that influence this response and propose potential enhancements. The study employed a qualitative descriptive and exploratory approach conducted between October and December 2021. Semi-structured interviews were conducted with 17 parents of children with disabilities and 25 health professionals in Rabat, Morocco. The results of the semi-structured interviews with parents highlight that the study predominantly included women (100%), specifically mothers. All parents expressed dissatisfaction with the healthcare services they received. Furthermore, a majority of health professionals exhibited a negative perception of disabilities and reported a lack of training in both the medical and social dimensions of disability care. The disclosure of a disability diagnosis and the manner in which it is communicated to parents can have an impact on their capacity to navigate the living circumstances and envision the future of their child with a disability. This study will enable healthcare professionals at various levels to engage in an informed reflection on a pressing and contemporary issue.